Gastroparesis Foods

When I discovered less fiber made for better assimilation of my daily foods, I started drinking more of my meals. Kelly Booth turned me on to the different stages of gastroparesis (which range from a lower fiber diet to tube feeding for the severely compromised). See Kelly’s website at http://www.Trials and Triblations.com for links.)

I seem to be at the beginning stages brought on more by brain surgery than by diabetes (although 50 years OK 47 – with that hasn’t helped. But no one ever gave me any info about diets or anything like that. One of the recommendations was to try almost an entirely liquid diet with a few saltines, thrown in for good measure. From there I started adding and subtracting foods and I’ still tweaking.

You can usually tell you might have it if your BG is much lower than expected 2 hours after a meal and then goes high a few hours later. Although excess fat and protein digest about 6 hours after eating also.

Your doc can have you tested for gastoparesis. I went to a hospital where they fed me some ‘radio active’ oatmeal, then tracked the time it took for my stomach to empty.

For me, the next course of action was drugs. Reglan, which I had allergic reactions to, then Propulsid, of which a side effect turned out to be dearh. It’s still on the market in other countries and I always suspected the US death rates were do to abuse, as in,’if some is good more is better’ variations. Your doc can still order it for selected patients.

My latest thrill is sugar-free, vanilla Spiro-Tein (check your health food stores or many places online). Google it. I use 8 oz. skim milk, 2 T Hershey’s sf chocolate syrup, a little Stevia, and 6 ice cubes. It’s like a malt!

Every Day Diabetes Heroes

There are a world of diabetes heroes out there, more every day, as people like you and me survive year after year. Detours aside the early days of diabetes, say St. Luke’s alleged patients, fasted until death. And it probably was extant before that. Few survived. We waited another 1900 years before insulin. Jeez Louise!

Most people today don’t think of diabetes as a death sentence- well maybe after their first year they don’t. The Diabetes family, with all its types, have siblings, grandparents, aunts, uncles and cousins and has wandered down to the present. Our heritage. Our roots.

Heroes do include doctors, nurses, CDEs, plus all the moms and dads who go out of their way to help us feel better : Get up in the middle of the night to check on us. And as magazines inform us there’s no shortage of world travelers, rock stars, and actors to wow us with their refusal to let diabetes get in their way. I’d list them all and thank them personally, but I’d be afraid I’d leave some one out!

Every friend who encourages us to make the right choice is a hero in my book. They’ll pause the video while I go check my BG, or tell me my pump just pinged while I’m enthusiastically relating last night’s rendezvous with destiny.

Heroes are everywhere if you’ll just notice. They admire, inspire even fire you if you can’t keep up with your own self-designed protocol. I say bless them all – every day.Did I mention cats and dogs? Faithful friends. And all who support you online?

It’s an endless list and I’m grateful.

If you don’t have Diabetes, Read This…

To all my friends and family, there are a couple of things you should know like the term Diabetes is a last name and there are many types of diabetes that function as siblings. And almost every person with diabetes has their own plan.  What you read about is usually modified by each and every person.

There are Type 1s, Type 1.5s, Type 2 (the most common)  Type 3s and some say Type 4’s.  Plus gestational. Stay tuned. Different types are treated differently.  Most doctors adjust your treatment to your lifestyle. (Mine might be a chocolate bar once a week. 🙂

I differ from others with diabetes in taking my insulin after meals ,as I have gastroparesis (stomach paralyzed due to long-term diabetes, with years of high blood sugar).  I’m on a low fiber diet.  I don’t eat what others can.

If an article recommends to take your insulin 1/2 hour before eating, this is different and dangerous for me.  I can also eat sugar (small amounts) because today’s labeling tells just how much sugar is in that frozen yogurt and I can tell my pump to deliver the exact amount of insulin to cover it.  Too many worry about their loved ones being ‘non-compliant’, a word associated with doing what you damn well please, or for short a ‘bad diabetic’.

Unless you can present it tactfully (“I read this article that said you’re supposed to … how does that work for you?”), if you’re not a medical professional (and some orthopedic surgeons , chiropractors, podiatrists and other specific  specialties can be totally clueless,) well, keep your mouth shut.

 

I do not know how high my blood sugar really was for years , despite my Glucose meter but I do know that when I got my pump 14 years ago my HA1c was over 11.  My fantasy device would be a tubeless one, implanted ,that showed via electronics what it was doing on your BG reading on your ingested carbohydrates, fiber and fats – BG readouts and automatic insulin dosing.  My device would be a practical one.  And of course Medicare would pay for it.

When computers came into focus 30 years after  my diagnosis, I found there  were others like me  –   today they run into the thousands –   (like the Insulin Pumpers Website -ip@Insulin-pumpers.org)  with branches in other countries.  They discuss every new device on the market and those that will be , My device could be programmed, by you, alert you when you’ve eaten more carbs than you actually need, thus making it easier to program your weight loss or fiber intake, or fat consumption.  It would alert you after you’ve eaten a bag of potato chips that you’ve eaten your fat allotment  for the next 3 days. AND it would have your choice of alarms  with your voice if desired,  such as “Hey mama, pay attention here.” or “It’s that time again.” or whatever you want it to say.  I like the idea.  You could add anything else too. “Take your meds now.”  or Dr.’s appointment at 9:30 am on May 18th.”  How ’bout – “Congratulations, you were right on target today!”

Tracking Everything

My CDE asked for my records but no, I didn’t have any.  My BG meter tracks 400 entries.  My pump shows all of my insulin boluses, plus carbs, times, etc.  What do I need to track?  Lotsa things.  Food for one. Changes in basal rates, sensitivity levels, illness (physical and mental) all need to be tracked.

Food, beyond carbs can give your CDE clues to why your BG is dropping so suddenly after meals that you may pass out cold .  For me it was gastroparesis (stomach nerves dysfunctional after years ‘n’ years of Type 1. [48])  A simple log showing my penchant for high fiber foods, would have shown her why my insulin was getting to me before my food.  High fat diets do the same – they slow digestion in an already slow digestive system. My goal is to find the easiest tracking system. I’m thinking about writing down common food combinations in my diet

Basal rates?  Well, they change everything. You can hope your CDE has your last rates, but it’s easier to write them down.  My plan is to get a booklet for the year and write them down.

Sensitivity levels need to be tracked for the same reasons.  They can change over the years with age and length of diabetes and any of your adjustments need to be shared with your CDE and/or your doctor.

Physical illness or injury need to be tracked as they may increase your daily insulin rates, or in the case of gastroparesis, you may lower it. Depression of course can run hand in hand with diabetes and can indicate that your diabetes is not well controlled, which can lead to other diagnoses. Like, yeah you guessed it, gastroparesis.

Write it down or track online or speak into a little microphone.

Have You Met Kelly Booth?

One of my biggest delights was stumbling across Kelly Booth’s Blog., Trials and Tribulations  (of Type 1 Diabetes) when I was tracking Gastroparesis information – there’s a dearth of information on that (that means ‘not much’ and reminds me of Darth Vader – you know that’s not a good thing.)  Kellty’s blog site is sparkling with links to many (all?) websites + concerning diabetes, including one that had gastro diets on it. (I knew I was going to be pick ‘n’ axing it  onlinewhen I discovered gastroparesis is not in my spell check.)

I found the diets (different stages), followed them and went to nearly normal BGs from passing out stone cold on my cement floor, in my bed and once in my yoga class.  This has been a nightmare for 6 months and finally I stopped driving altogether.

My problem seems to be too much fiber.  Too much?  But true to the allowed foods in all stages of that diet, everything it said to avoid, you betcha, I was eating it. A lot of high fiber food to improve my digestion and elimination – seeds nuts, raw veggies and fruits (ala Swayze Fostor)  popcorn, beans – it was a veritable feast of healthy food. I cut back on all of it and  also ‘fats’ – usually olive oil, nuts, avocados, and whipped cream (occasionally).  I feel better.   I’m driving – yippee!  All this from a blog.